Engaging people in cancer research funding
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What is patient engagement in research funding?
![Two women sitting, one smiling at the other](https://cdn.cancer.ca/-/media/images/research/our-approach/research-our-approach-supporting-clinical-trials.jpg?rev=463ccb68108e44fdac5d805589006e21&cx=0.5&cy=0.5&cw=575&ch=452&hash=9ABE6A0408A1FA7DFCA5FB1B31C5279D)
Being a patient partner – what you can expect @(Model.HeadingTag)>
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Review research proposals
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What it's like being a patient partner
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Involving patients in the review process brings a perspective that many researchers are not familiar with. The sense of participating in an important program was rewarding. I found the experience invaluable. In many ways it reignited my interest in the science of cancer. I was able to better understand the challenges facing research funding agencies. Thanks.
— Angus
![Photo of a woman sitting on a restaurant patio](https://cdn.cancer.ca/-/media/images/research/our-approach/kathy-testimonial-research-resized.jpg?rev=0c5b9b7657914d31854be01d7fe68b1a&cx=0.5&cy=0.5&cw=527&ch=457&hash=7BD7DD791DD2C5F7A51D8C6322324EFA)
I am glad the patient voice is part of the review process. I thought each of us added depth and breadth to the discussion based on our lived experience and our personal focus. I think in many cases, applications seen from a non-technical, 'public' perspective added a fresh vision to the debates. Thank you to the patient engagement staff for being so supportive, patient and kind.
— Kathy
![Image of Patient Partner Lori](https://cdn.cancer.ca/-/media/images/research/engaging-people-in-cancer-research-funding/lori-pe-quote.jpg?rev=02b21ac8fe4548aaaad56b7220fe73ee&cx=0.58&cy=0.47&cw=527&ch=457&hash=7AA2EEA106249BEFAE52FB502CCC30BD)
[When co-developing the CCS Health Equity Research Grants] I provided three pages of comments, with the first page focusing on the language I didn't like in the proposal as it seemed exclusionary and overly clinical. The heading I used in my comments was "Certain words in grants tend to get my back up". Judit (CCS Senior manager, research partnerships and engagement) called me to go through every comment I made – and I made so many comments! – and as she asked questions I thought, “Wow, they really want to make this program inclusive."
— Lori