CCS Data Transformation Grants
Important Dates
Background @(Model.HeadingTag)>
Over many decades Canada has invested in the collection of cancer data through registries, medical records and research studies. Despite continued investments and new initiatives, there have been growing concerns about the ability to link datasets and the comprehensiveness of linked datasets, challenges regarding timely access to data for reporting and further research, and the quality and completeness of the data being collected.
The Canadian Cancer Society (CCS) and Canadian Partnership Against Cancer (CPAC), in collaboration with the broader cancer community, have released a pan-Canadian cancer data strategy with the mission of inspiring and supporting the mobilization of data to improve cancer care1 access, experience and outcomes in Canada. Through extensive collaboration with partners across the cancer control community2, the strategy has identified three priorities for action and investment to advance the data strategy and improve cancer data in Canada.
- Advancing this priority will make it easier to capture data in current systems and to access data that has already been collected
- Advancing this priority will improve the ability to draw on data from multiple (federated) sources by enhancing interoperability, promoting use of standardized identifiers and ensure various data holdings are accessible and ready for analysis
- Advancing this priority will make data available about individuals seeking care across the cancer control continuum and about important parts of the cancer experience not represented in current data sets
First Nations, Inuit and Métis partners were engaged in the development of the cancer data strategy. Along with the priorities and actions outlined, the cancer data strategy highlights the importance of supporting First Nations, Inuit and Métis-governed data and data systems to build capacity for improved cancer data.
The strategy recommends specific actions to advance each priority. As part of implementing this strategy, CCS is looking to support short and mid-term projects that demonstrate potential solutions, addressing one or more of the priorities, that can be scaled and sustained to meet the vision of enhanced data collection, integration and use leading to improved cancer care1 and outcomes for all people in Canada.
The intent of this program is to engage and bring together the data community and support pilot projects or implementation of successful pilot initiatives, that have the potential to solve issues in cancer data. CCS will promote innovations that have the potential to be instrumental in improving cancer data in Canada, ultimately leading to more equitable and timely access to innovative and affordable, high-quality cancer care.
1 For the purposes of the strategy and this research program, care refers to and includes all aspects of the cancer experience from prevention, early detection and screening, through diagnosis and treatment, supportive and palliative care, into recovery and survivorship, as well as end-of-life care.
2 The cancer data strategy was developed in collaboration with a wide range of cancer system partners, including patient and family advisors and people with lived cancer experience, First Nations, Inuit and Métis partners, cancer system leaders, research organizations and funders, provincial and territorial cancer agencies and registries, and pan-Canadian health organizations.
Program description @(Model.HeadingTag)>
We are seeking proposals for projects that employ novel approaches to enhance the collection, integration and use of cancer data in Canada. Projects funded should demonstrate specific actions that can be scaled and sustained to improve the cancer data ecosystem in Canada. These may be pilot or proof-of-concept projects that show incremental progress towards one of these three priorities or full-scale, implementation studies having completed a successful pilot that are aligned with the identified priorities in the cancer data strategy. For the purpose of this call, cancer data is being defined as either patient data or population-based data related to cancer.
Projects that focus on solutions to other issues related to cancer data are eligible, as long as the issue being addressed is justified in the application and addresses concerns related to accessibility, completeness, quality and/or timeliness of cancer data in Canada.
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Test or implement an innovative solution to an urgent data challenge impacting cancer data and cancer care
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Focus on work that will bring more value to existing data
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Have the potential to create a more integrated approach to cancer data management
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Be able to readily access any required datasets or be evaluating a novel approach to overcoming data access concerns
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Articulate clear plans for knowledge translation, scalability and sustainability that have a high likelihood for success
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Begin delivering insights within 6-24 months of project commencement, commensurate to support received.
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Support enhanced understanding of impacts of cancer on underserved populations
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Serve the current and future needs of cancer communities by improving capacity to respond to future health crises with agile planning
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Benefit people with cancer or at-risk of developing cancer.
Applications are invited from individuals or teams working in health care, academia or at other institutions (including cancer agencies and registries, government) with expertise in data in Canada. CCS is committed to equity, diversity and inclusion and strives to promote inclusive excellence in its research programs. We welcome proposals that tackle issues related to equity, diversity and inclusion.
To increase diverse representation in our cancer research and data ecosystem and in alignment with the cancer data strategy, we support and encourage applications from First Nations, Inuit and Métis applicants and organizations.
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Proposals that do not involve clearly defined cancer datasets
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Proposals that aim solely to collect and/or generate new data without addressing specific actions under the cancer data strategy priorities and linking to existing cancer datasets, with the exception of missing data (e.g., stratifiers) required for linking or increasing interoperability of datasets.
Funds available @(Model.HeadingTag)>
CCS intends to support at least one project focused on each of the three priorities for action and investment, as outlined in the cancer data strategy.
Funding will be provided to support the direct costs of the project, including supplies and software, eligible salaries, equipment, and research data center access fees associated with the proposed work. Equipment requests cannot exceed 15% of the requested budget. Indirect costs are not eligible. Please consult our grant expense policies when creating your budget.
Total Budget*: |
Approximately $2.6M |
1 to 2 year period (proof-of-concept, pilot) |
Up to $125,000 total (~6 grants) |
3-year period (post pilot, full scale study) ** |
Up to $150,000 per year (~4 grants) |
Successful applications must fall within the fundable range for CCS awards (>3.5).